Mina still feels emotional when she talks about how the Charity helped her family many years ago. As a full time carer for her husband and a full time civil servant, it was a relief to hear the words “we can help”.
When Mina’s husband, Alan, was diagnosed with a rare form of Muscular Dystrophy, their lives changed forever. The condition causes gradual muscle wastage and can have a detrimental impact on an individual and their family.
“We noticed that older people could move around more easily than him and it didn’t make any sense. No one in our family has had anything like this before so we were shocked when we got the results.”
Over time, Mina became a carer for Alan, helping him get out of bed, washed and dressed as well as cooking him meals. Alan could still walk at this stage and was optimistic about his condition but he struggled to use the stairs.
“I get choked up when I remember that time. We needed a stair lift so my husband could be comfortable moving around the house but we couldn’t afford it. Financially, we couldn’t cope.”
With mounting credit card debt, the cost of a stair lift was out of the question. In addition to financial worries, Mina was now overwhelmed with balancing work and being a carer. Only after she helped her husband start his day, could she start her own and this was becoming increasingly stressful during the working week.
That’s when Mina got in touch with the Charity and explained her personal situation. We found that we were able to pay towards the fitting of a stair lift and provide Mina with a Carers Passport. This is a document we can provide carers and their line managers which highlights how the individual's responsibilities impact their work. It also includes any agreed flexible working hours. Mina was now finding it easier to balance her work and caring responsibilities whilst Alan could finally feel more confident in his own surroundings.
“The Charity made life a lot easier for my husband and I’ll always be grateful for that… and the Carers Passport has changed my life as well. It’s easy to feel isolated as a carer, and it’s nice to know that people care about you. It’s nice to finally feel understood.”
Although we no longer offer the Carer's Passport, we can still help you complete your Civil Service Carer's Passport. By using our Carer's Passport and Carer's Statement Digital Tool, you'll be able to reflect on your caring responsibilities before you have a conversation with your manager and complete your Civil Service Workplace Carer's Passport. The tool also provides holistic information, support and services for outside the workplace including our Carer's Statement.