Alexandra’s son was diagnosed with an inflammatory condition called Crohn’s disease when he was twelve years old. Crohn’s can have a significant impact on day-to-day life from a lack of energy to severe pain after eating.
Five years on, with his immune system under strain, Alexandra is still required to monitor everything and provide additional care in many ways. Yet as he looks ‘a pillar of health’ she feels that many people don’t really understand what is going on.
“I believe there is a stigma attached to Crohn’s disease, due to the lack of understanding about its impact on individuals and their families.”
Juggling her caring responsibilities with a full time job became overwhelming for Alexandra. That’s when she decided to reach out to the Charity for help. Following a supportive conversation on the phone, we explored different options available to her, with the hope of restoring a sense of calm in her chaotic schedule. This included signposting to a Carer’s Passport and our wellbeing services.
“The Carer’s Passport has really helped to relieve some of the pressure I was feeling, particularly as I regularly move between managers in my type of work. I don’t have to tell everyone and repeat my life story anymore. I don’t always want to have to do that. I’m not very good at explaining things, I get flustered, having it written down helps me to explain things.
Without the Charity’s help, I don’t know where I’d be. To the person I spoke to on the phone, keep doing what you’re doing because it’s remarkable.”
Although we no longer offer the Carer's Passport, we can still help you complete your Civil Service Carer's Passport. By using our Carer's Passport and Carer's Statement Digital Tool, you'll be able to reflect on your caring responsibilities before you have a conversation with your manager and complete your Civil Service Workplace Carer's Passport. The tool also provides holistic information, support and services for outside the workplace including our Carer's Statement.